Hi! Here are a few questions I want to know about you and cerebral palsy:
I don’t know what it is like to have CP so is it really that bad and how bad does it affect your everyday life?
Hi! 😊 Well, I don't really consider having CP something bad. If I hadn't been born with cerebral palsy I would not have met many of my friends. Yes, there are times where I’m in pain and grumpy and want to give up and go hide under my covers but I always remember that there are people who go through other difficult things and keep going. I decide to continue on with my day. I have to have help with some things like getting ready for the day and cooking but life isn't always so bad!
Have you ever tried to do something about CP like taking therapy class or surgery?
Yes, I have had two operations related to my CP and have done therapy all of my life. There is no cure for cerebral palsy, but a lot of things can help me to move easier.
Did you go to a special school?
I went to regular schools the whole time I was in school. I went to school with able-bodied students and was in classes with them as well as students with disabilities. There was a classroom where those of us with disabilities would go if we needed help.
Hi! I wanted to ask you a question. What part of your brain did CP affect?
CP affects the cerebral cortex. This is the part of your brain that controls muscles and how they move. CP can affect each person with it differently.
Hello, can cerebral palsy affect the way someone breathes? Yes, but thankfully I don't have a problem with that.😊
How do you feel about having CP? I don't really think about it too much. It's difficult when people say or do mean or ignorant things. It can bother me I'm in pain because my muscles are too tight, or a place isn't as accessible as it should be. Those things can make me sad and angry, but for the most part, I'm okay with it.
Hi! I have questions:
Do you think your life is easy?
No, but no one's life is easy.
Do you go to therapy? Not right now but I do exercises every day.
Once it has affected your brain can it affect more?
Yes, because your brain controls the rest of your body. The good news is CP is a nonprogressive ( this means it doesn't get worse over time)disorder so all the effects often take place at the same time.
Do you think your life could improve from now.
Yes. I believe with hard work and perseverance anything is possible.
Does your CP bother you much? Sometimes. It bothers me when buildings aren't as accessible as they should be or people make assumptions about me because I have a disability.
Did you go to a normal school as a child? Yes.
Thanks
Hi, I was wondering what type of CP do you have? I have spastic hemiplegia cerebral palsy. That just means my muscles are very tense all the time and cp affects my lower body the most.
I also was wondering what is hard in your life? A lot, but I do my best to make my life as full as I can. People with disabilities deal with a lot of prejudice and discrimination. There a lot of everyday difficulties too, such as reliable caregivers, and lack of accessible transport.
Do you wish your life was different in some way? Yes, I wish the things I just mentioned weren't so common.
Do people understand a lot, a little, or in between? It depends on the person and how well they listen to me when I try to tell them about my experience.
Also, how did you get CP? I was born too early. My lungs weren't fully developed and my brain didn't get enough oxygen.
How does CP affect you? I have to use an electric wheelchair, a shower chair, and electric lift. They all help me do different things within my day.
Did you go to school when you were a kid? Yes.
Have you ever met anyone like you? Yep! Many of them are my friends now and have been since I was younger than you and your classmates! 😊
Did you go to a special school when you were a kid? No
Hello, nice to meet you ☺Hey there, nice to meet you too! 😊
How did you get CP? I was born before my lungs were ready to take in enough air to give oxygen to my brain.
Do you have things that are hard for you to do? Yes, What? Personal care things like getting ready for the day and some other things.
What type of CP do you have? I have spatic CP.
Do people treat you normal? A lot of people are very nervous when they first meet me. There's no need to be so worried though. I like and do a lot of things people without disabilities do. I like to read, listen to music, visit with my family and friends. I sing, write, and act because I love entertaining people.
What therapy do you do? I lift weights and stretch every day.
Hi Hi 😊
I wondered what things are hard in your life? It's sometimes difficult for me to move and organize things. A lot of things are difficult for me, but I have learned to ask for help when I need it.
I wanted to ask what type of CP do you have? I have spastic CP.
I wondered what would you want to be able to do if you could? I would be an ice skater.
Hi, do the types of doctors cure the full CP or only they cure some parts CP? Well, there is no cure for CP but there are doctors who can help me be more mobile.
Hi hello, I was wondering what everyday things can you do and not do? Hi, 😁 I need help getting ready for the day. Things, like taking a shower and getting dressed, are things I need help with, reaching things on high shelves or dropping things on the floor happens a lot.
Would like to know does CP affect your sight? It can. I wear glasses, but I'm not sure my CP is why I need them, I didn't need them until I was a teenager.
I was wondering how you got CP? I was born too early and my lungs didn't get enough oxygen to my brain.
Hi Jennifer, here are some questions for you from me
Question 1: what type of CP do you have? I have spastic CP.
Question 2: do you have any friends that have CP? Yes, a few, and one of them is my very best friend. 😊
Question 3: what is it like to have your kind of CP? Imagine being made of rubber bands that are stretched as much as they can be without breaking.
Question 4: have you read “Out of My Mind”? It is a great book. No, I haven't. I will have to visit the library soon!😊
That is all my questions for you
Dear Jennifer,
What type of cerebral palsy do you have? Spastic CP.
What can you do? I can do a lot of things. I can write, sing, and act. In terms of everyday things I can help dress and I can do most of my own grooming. I can also cook as long as I can reach the stove and pans.
What can you not do? I can't do things like walk or run, but I am a very smart and creative person and can do a lot to help people. Everyone has things they aren't able to do, but I like to focus on the things I can do.
Dear Jennifer, I was wondering if one CP hurts more than one part of the brain? Sometimes it can.
Dear Jennifer, I’m wondering what kind of CP you have? Also, how is it like to have that kind of CP? I have spastic Cerebral Palsy. It can be difficult because my muscles are very right most of the time. It can make it hard to move.
What do you think is hard? A lot of things are difficult for me. I can't tie my shoes by myself and find small zippers to be pesky, but I intend to keep practicing with these things and I ask for help in the meantime. There are people whose job it is to help people with disabilities complete daily tasks. They are called Home Health Aides.
How do you get around? I use a very cool electric wheelchair for short distances and an accessible van for farther trips.
What type of CP do you have? I have spastic CP.
What school did you go to? I went to a few schools. I went to elementary school, middle school, and high school in my hometown here in Michigan. I went to Wayne State University in Detroit. I also went to Southern New Hampshire University, but that last part was online.
Is it hard for you to do everyday things? It can be, it just depends on the task.
Hi Jennifer, I want to know if people have CP, does the CP always have to deal with moving and talking? Hello 😊. CP always makes moving different, but not always talking.
Hi Jennifer, nice to meet you. I have a question. Did your CP get better? Hey 😊. It has with a lot of work. My CP will never be cured and surgery, but even a little movement each day helps.
Dear Jennifer,
Can you move your legs and arms? Yes, I can, maybe not as easily as some other people, but I can. 😊
Did you go to a special college because you have CP? Nope.
Did kids ever make fun of you when you were little? Yes and it hurt my feelings a lot, but I had good friends and family to remind me of the good things in life and that people who do things like make fun of others like that really only have problems within them selves and the is why they're being that way toward others.
Dear Jennifer,
What kind of CP do you have? Spastic CP
Does it affect you?Yes
Dear Jennifer, it is nice to meet you.
I was wondering how do you get out of your wheelchair without hurting yourself and also what things you can’t do? I have an electric lift. It lifts me from my wheelchair to my bed or anywhere I want to move.
Dear Jennifer, I’m going to ask some questions, choose what you want to write wisely…just joking but…can you answer my questions.
What type of CP do you have? I have spastic CP.
Did you go to any special schools? Yes and No, I went to regular schools, with a classroom where those of us with disabilities would go if we needed help.
Dear Jennifer, hi, I have a question for you. How hard is it to get around in your wheelchair? I am very inquisitive so, please tell me. It can be very difficult at times because not everywhere is wheelchair accessible and there are some times other barriers occur.
Dear Jennifer,
How badly do you have to get hurt to get CP?CP is a brain injury, so very badly. This usually occurs during or before birth, sometimes it can happen after, but that's a little more rare.
How do people enjoy their free time with CP? We do a lot of things everyone else does, read books, see movies, go to parks, play sports, and visit with our family and friends.
Are people with CP able to be the owner of a pet? Everyone with CP has different needs, but generally people with CP can have pets.
Can you not do certain things with CP? It all depends on the way the CP effects the person.
Hello, I was just wondering, what are some things you can’t do very well? I can't stand or walk too well but I'm hoping to get some very consistent and good therapy.
What do you do in your free time? I love to read and go to the movies. I love listening to music. My favorite things are to write and perform comedy. 💗
Can CP affect how you breathe? It can but haven't had trouble with my lungs since I was very little 😊
Thank you all so much for your wonderful questions. Please have a safe and happy summer and remember to be kind.💚💚💚💚💚💚💚💚💚💚
Sincerely,
Jennifer 😊💗🤗
The City of Palmetto Bay, Florida lit up their City Hall green in March 2019 to show support and solidarity for those with cerebral palsy and their families.
Photo credit:Karyn Cunningham
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